[Chronic myelomonocytic leukemia] The medical condition two years later

Two years have passed since I transplanted half-matched haplo between relatives.

I will briefly describe my current physical condition and blood figures.
I would be happy if you could refer as one example to those who are going to transplant or who just transplanted.

Blood data

Leukocyte → 5000
Hemoglobin content → 123000
Platelets → 80000

Liver

T – BIL, AST, ALT are normal values.
ALP → 805, LDH → 276, γ-GT → 527 are higher than average.

Kidney

Basically normal value. The value gets worse somewhat when fever comes out.

Blood glucose level

It will be listed in another article.

Splenomegaly

It shrank from the time of transplantation.

Body temperature

About 36.5 to 36.8. I get a fever once every two months.

Exercise capacity

Vertical jump 1 cm can be jumped. I can not run. I got a breath as I climbed the stairs on the first floor. Desk work is available for one day.

Bone

Bones are brittle. It is osteoporosis.

Body weight

Body weight is the same as before transplantation, but muscle mass is much lower.

Vision

It gets a little worse. It is thought that it is the influence of smartphone. No signs of cataract or glaucoma.

Hearing ability

No change. Just before the transplantation, I suffered several times with otitis media but now it is no longer.

Oral cavity

Saliva and no problem. Occasion somewhat white in the mouth.

Skin

There is no conspicuous eczema. It will become a matter of slight drying.

Hair

Before transplanting, it was straight, but it became hair after transplantation. Even after two years it is still in its hair. I think that the amount of hair has recovered, but the hair looks somewhat smaller as the hair got thinner than before.

Claw

Although the state of the nail has improved better than just after the transplantation, a vertical line is still seen slightly.

Drug taking

Bacta
Zobirux
Urso deoxychol
Levolade
Buoyfend
Exide
Nexium
Lasix
Fosamak

Immunosuppressant

Prednisolone → 7.5 mg / day

Progf → 0.4 mg / day

Treatment

Infusion of globulin once a month.

GVHD

Liver dysfunction. There is basically no diarrhea.

Out visit

Once in two weeks.

Summary

My doctor is told that recovery is worse than others, but even though I am spending it as good as I am.

I got better feeling I could go and enjoy the rock festival.

You will be better than me!